史蒂芬,蒂默曼斯、布赫宾德·玛拉. 2020. 拯救婴儿:新生儿基因筛查之谜[M]. 上海:华东师范大学出版社. 米歇尔,福柯. 1999. 必须保卫社会[M]. 钱瀚,译. 上海人民出版社. 米歇尔,福柯. 2011. 临床医学的诞生[M]. 刘北成,译. 南京:译林出版社. 方静文. 2020. 人造"自然"——整容的人类学研究[M]. 北京:中国社会科学出版社. 古雅琳、于成. 2019. 医学知识的社会建构——基于科学社会学视角的分析[J]. 中国社会医学杂志(5):462-464. 黄盈盈. 2019. 艾滋病与生活逻辑[M]. 武汉:华中科技大学出版社. 黄盈盈、鲍雨. 2013. 经历乳腺癌:从"疾病"到"残缺"的女性身体[J]. 社会 33(2):185-207. 傅豫川. 2017. 唇腭裂序列治疗计划[M]. 北京:人民卫生出版社. 赖立里. 2017. 生殖焦虑与实践理性:试管婴儿技术的人类学观察[J]. 西南民族大学学报(9):21-28. 赖立里、张慧. 2017. 如何触碰生活的质感——日常生活研究方法论的四个面向[J].探索与争鸣(1):104-110. 刘瑶瑶. 2020. 伦理与疗愈:先天性唇腭裂患者的疾痛叙事[J]. 医学与哲学(6):57-60. 林文源. 2014. 对称化医疗社会学:STS 对健康、医疗与疾病研究的启发[J]. 科技医疗与社会(19):11-72. 林文源. 2017. 把疾病带回来? 病患实作中的多元疾病客体化[J]. 台湾社会学 (33):1-62. 林文源. 2019. 医疗实作的社会学:在地医疗-社会想像及实作对批判的启发[J]. 台湾社会学(65):127-178. 马莲. 2011. 唇腭裂与面裂畸形[M]. 北京:人民卫生出版社. 马塞尔,莫斯. 2003. 社会学与人类学[M]. 佘碧平,译,上海译文出版社. 星加良司. 2015. 试论残障社会模式的认识误区及其实践性陷阱[J]. 社会 35(6):116-132. 石冰、李承浩. 2014. 唇腭裂序列治疗与团队建设[J]. 实用医院临床杂志(3):1-3. 郇建立. 2009. 慢性病与人生进程的破坏——评迈克尔· 伯里的一个核心概念[J]. 社会学研究(5):229-241. 徐婷婷、王晓东、余海燕. 2018. 胎儿唇腭裂产前诊断及预后研究现状[J]. 中华妇幼临床医学杂志(4):373-377. 余成普、廖志红. 2016. 甜蜜的苦难:I 型糖尿病人的患病经历研究——兼论慢性病的人类学研究路径[J]. 开放时代(4):206-223. 曾凡慈. 2017. 障碍与童年的交织:障碍儿童的童年研究[J]. 台湾社会学通讯(87):33-37. 曾凡慈. 2019. 协商"发展律令":早期童年的育儿实作与亲职治理[J].台湾社会学(37):47-96. 曾凡慈. 2021. 照护隐性障碍子女的道德工作:医疗模式、污名与预期[J]. 台湾社会学(41):95-142. 祝璞璞、黄盈盈. 2020. 盲人按摩:基于身体的职业分类及其自然化[J]. 青年研究(6):57-67. American Cleft Palate Association. 2009."Parameters for Evaluation and Treatment of Patients with Cleft Lip/Palate or the Craniofacial Anomalies." https://journals.sagepub.com/doi/pdf/10.1177/1055665617739564 Berger, Z. E. and Louise J. Dalton. 2009."Coping with a Cleft:Psychosocial Adjustment of Adolescents with a Cleft Lip and Palate and Their Parents. " The Cleft Palate-Craniofacial Journal 46(4):435-443. Blum, L. M. 2007. "Mother-Blame in the Prozac Nation:Raising Kids with Invisible Disabilities." Gender and Society 21(2):202-226. Bury, M. R. 1986. "Social Constructionism and the Development of Medical Sociology."Sociology of Health and Illness 8(2):137-169. Callon, M. 1999."The Role of Lay People in the Production and Dissemination of Scientific Knowledge." Science, Technology and Society 4(1):81-94. Casper, M. J. and Marc Berg. 1995. "Constructivist Perspectives on Medical Work:Medical Practices and Science and Technology Studies." Science, Technology and Human Value 20(4):395-407. Chuo, C. B., Yvonne Searle, et al. 2008."The Continuing Multidisciplinary Needs of Adult Patients with Cleft Lip and/or Palate." The Cleft Palate Craniofacial Journal 45(6):633-638. Conrad, Peter and Barker Kristin K. 2010."The Social Construction of Illness:Key Insights and Policy Implications." Journal of Health and Social Behavior 51:S67-S79. Fadeyibi, I. O., Olurotimi A. Coker, et al. 2012. "Psychosocial Effects of Cleft Lip and Palate on Nigerians:the Ikeja -lagos Experience." Journal of Plastic Surgery and Hand Surgery 46(1):13-18. Feragen, K. J. B., Anita Myhre and Nicola M. Stock. 2022. "'Will You Still Feel Beautiful When You Find Out You Are Different?':Parents' Experiences, Reflections, and Appearance-Focused Conversations about Their Child's Visible Difference."Qualitative Health Research 32(1):3-15. Goffman, Erving. 1963. Stigma:Notes on the Management of Spoiled Identity. New York:Simon and Schuster. Hacking, I. 1999. The Social Construction of What?. Cambridge:Harvard University Press. Haraway, D. 1988. "Situated Knowledges:The Science Question in Feminism and the Privilege of Partial Perspective." Feminist Studies 14(3):575-599. Jasanoff, S. 2004. States of Knowledge. Abingdon:Taylor & Francis. Knorr-Cetina, K. 1981. The Manufacture of Knowledge:An Essay on the Constructivist and Contextual Nature of Science. Oxford:Pergamon Press. Kuan, T. 2015. Love's Uncertainty:The Politics and Ethics of Child Rearing in Contemporary China. Oakland:University of California Press. Latour, B. 1987. Science in Action:How to Follow Scientists and Engineers through Society.Cambridge:Harvard University Press. Law, J. and Annemarie Mol. 2002. Complexities:Social Studies of Knowledge Practices.Durham:Duke University Press. Leiter, V. 2007. "'Nobody's Just Normal, You Know':The Social Creation of Developmental Disability." Social Science and Medicine, 65(8):1630-1641. Landsman, G. H. 2009. Reconstructing Motherhood and Disability in the Age of"Perfect"Babies. New York:Routledge. Lock, M. and Vinh-Kim Nguyen. 2010. An Anthropology of Biomedicine. Hoboken:Wiley-Blackwell. Ma, K. W. 2000. "Hare-lip Surgery in the History of Traditional Chinese Medicine."Medical History 44(4):489-512. Moi, A. L., Harald Gjengedal, et al. 2020. "'I Smile, But without Showing My Teeth':The Lived Experience of Cleft Lip, and Palate in Adults." The Cleft Palate -Craniofacial Journal 57(7):799-807. Mol, A. 2002. The Body Multiple:Ontology in Medical Practice. Durham:Duke University Press. Mol, A. and John Law. 2004, "Embodied Action, Enacted Bodies. The Example of Hypoglycaemia." The Body and Society 10(23):43-62. Montirosso, R., Claudia Fedeli, et al. 2012. "The Role of Negative Maternal Affective States and Infant Temperament in Early Interactions between Jnfants with Cleft Lip and Their Mothers." Journal of Pediatric Psychology 37(2):241-250. Mouradian E. W. 2006. "Are We Helping Children? Outcome Assessments in Craniofacial Care." In Surgically Shaping Children:Technology, Ethics, and the Pursuit of Normality, edited by Erik Parens. Baltimore:Johns Hopkins University Press. Nelson, P. A., Ann-Louise Caress, et al. 2012. "'Doing the Right Thing':How Parents Experience and Manage Decision -making for Children's Normalising Surgeries. " Social Science and Medicine 74(5):796-804. Parens E. 2006. "Thinking about Surgically Shaping Children." In Surgically Shaping Children:Technology, Ethics, and the Pursuit of Normality, edited by Erik Parens.Baltimore:Johns Hopkins University Press. Pickering, A. 1992. Science as Practice and Culture. Chicago:University of Chicago Press. Pisula, E., Ewa Lukowska, and Piotr Fudalej. 2014. "Self-esteem, Coping Styles and Quality of Life in Polish Adolescents and Young Adults with Unilateral Cleft Lip and Palate." The Cleft Palate Craniofacial Journal 51(3):290-299. Talley, H. L. 2014. "Saving Face:Redeeming a Universal Face." In Saving face:Disfigurement and the Politics of Appearance. New York:NYU Press. Timmermans, S. and Steven Haas. 2008. "Towards a Sociology of Disease. " Sociology of Health and Illness 30(5):659-676. Timmermans, S. 2007. Postmortem:How Medical Examiners Explain Suspicious Deaths. Chicago:University of Chicago Press. Timmermans, S. and Marc Berg. 2003."The Practice of Medical Technology. " Sociology of Health & Illness 25(3):97-114. Watterson, T., Maria Cecilia Mancini, et al. 2013."Relationship between the Perception of Hypernasality and Social Judgments in School-aged Children." The Cleft Palate Craniofacial Journal 50(4):498-502. Webster, A. 2002. "Innovative Health Technologies and the Social:Redefining Health, Medicine and the Body." Current Sociology 50(3):443-457. Williams, S. J. 2000. "Chronic Illness as Biographical Disruption or Biographical Disruption as Chronic Illness? Reflections on a Core Concept." Sociology of Health and Illness 22(1):40-67. World Health Organization. 2022. "Oral health (Fact Sheet)." https://www.who.int/news-room/fact-sheets/detail/oral-health. |