社会杂志 ›› 2021, Vol. 41 ›› Issue (2): 192-217.

• 论文 • 上一篇    下一篇

生命历程中的关键时刻与时间重构：基于老年癌症患者及社会工作介入的研究

陈心想1, 王杰2   

  1. 1. 中央民族大学民族学与社会学学院;
    2. 福州大学人文社会科学学院
  • 发布日期:2021-03-23
  • 作者简介:王杰,E-mail:wongjie@foxmail.com
  • 基金资助:
    本研究得到教育部人文社会科学研究项目“晚期癌症患者的善终困境与社会工作介入研究”（20YJC840024）和国家社科基金一般项目“中国特色社会学学术体系和话语体系研究”（19BSH002）的资助。

Moment of Truth and Time Reconstruction in Life Course: A Case Study of Elderly Cancer Patients and Social Work Intervention

CHEN Xinxiang1, WANG Jie2   

  1. 1. School of Ethnology and Sociology, Minzu University of China;
    2. School of Humanities and Social Sciences, Fuzhou University
  • Published:2021-03-23
  • Supported by:
    The research is supported by Humanities and Social Science Research Project of Ministry of Education (20YJC840024) and National Social Science Foundation of China (19BSH002).

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摘要： 在生命历程研究领域，以往学者的研究大多是从客观时间切入。本文以老年癌症患者为研究对象，分析患者获知患癌事件的“关键时刻”对其在时间上“主观体验”的影响，以及社会工作者与患者一道重构时间感知的实践。首先，本文分析了在确诊癌症后，癌症患者主观时间体验的改变。然后，本文从时间延展与生命意义的角度探讨了患者的能动性与社会工作实践相配合如何重构了患者的时间感知和生命价值。最后，本研究的发现也适用于经历了“关键时刻”且生命历程遭受挫折的其他群体，对生命历程理论发展和社工实践具有重要价值和意义。

关键词: 生命历程, 关键时刻, 时间重构, 癌症患者

Abstract: The existing literature on life course study mostly places individual life course events on objective timelines and lacks attention to individuals' subjective experience of time. Terminally ill elderly cancer patients from the LF hospital in Shanghai are selected for this study to examine the impact of the moment of truth when patients are informed of their diagnoses on their subjective perception of time. The study finds four major changes occurred after this critical moment:(1)Reconstructions of self-identity;(2)Compression and extension of time in life-course narratives;(3)Perception of time affected by pain and suffering;and (4)Time structure impacted by treatment schedules and hospital appointments. We further examine the influence of social work intervention on patients' subjective perception of time and how social workers help patients regain values of life. Active involvement by social workers at the end of life care empowers elderly cancer patients in multiple ways. Through cognitive intervention on reconstruction of time structure,social workers help patients to fulfill their unfulfilled wishes,to form a new narrative of their life story through "photo albums",to alter subjective perception of the passing of time,and to have positive anticipation of the future and healthier mental state. The findings in this study are also applicable to other groups who have also experienced "moment of truth" and suffered setbacks in their life course. Finally,this study provides many insights for the further development of life course theory,and promotes social work practice,especially the end of life care intervention service guided by life course theory.

Key words: life course, moment of truth, time reconstruction, cancer patients